Friday, February 3, 2012

Special Day, Special Friends and a Golf Tournament

Today is my last official day as an employee of Rady Children's. I am trying not to be overly emotional about it. It helps that I had visitors this morning and that I got my laptop back today. It also helps that some very special friends are putting on a golf tournament in my honor on March 10. You see, now that I am not working, I can no longer accept Disability Payments from the State of California. I must now apply for Social Security Disability. I have been told that it can take up to a year to actually start receiving these payments. So what do we do in the meantime? That is a good question. Luckily, my parents have offered to supplement our income and Steve's family is helping a bit too. Plain and simple, especially considering my increased medical expenses, this household can't run on a teacher's salary alone.

This is where the golf tournament comes in too. Especially since it is not tax deductible, I am truly honored by the number of donations that we have received. Many from people we do not even know. I am even more honored by the work of the tournament committee who are sacrificing time out of their already busy schedules to get this done. I feel loved.

On the health front, I had a blood transfusion on Monday to relieve me from anemia. I feel so much better. I no longer get winded walking around my house, there is pep in my voice and I even did some laundry yesterday. The other side, however, is that I have not been able to have chemo for the past two weeks because my platelet count is dangerously low. Dr. Boles says not to worry and that my blood chemistry appears to show that my liver is functioning a little better than it was before. This is very good news. So, my goal is to have chemo February 13. It will undoubtedly wipe all of my counts out again, bring back my anemia and make me sick. I can handle it, if I know it is working.

All in all, I am really looking forward to the golf tournament, where I will speak and participate where I can. Please check it out using this link, if nothing else just to admire the good work my friends are doing. I take great pride in these friends. They are loved more than they know.


  1. Thank you, that’s very interesting information. I need to share with my friends.

  2. Hi Marsi, Been thinking about you a lot lately and hoping you are okay. I realize that you left RCHSD and was sad to know you were leaving. I understand your health, family and all of that comes first. Take care of yourself. Hope you're getting lots of love and attention from friends and family. It looks like you are. So sorry for all that you are going through. You're a tough cookie. You're going to be okay. God bless you and heal you, and continue to bless you and surround you with lots of loving family and friends. If you ever need anything, please do not hesitate to contact me. Natalia at RCHSD x8188. Miss you! Sending lots of hugs and warm wishes your way. Take care.